Skip to main content

Next steps

I know many of you who read these posts have diligently checked for updates over the past while. I know you worry. Thank you, for loving us that much. There hasn't been anything "new" so I didn't feel it necessary to write anything. The last treatment was hard and heavy, but that's fairly normal that each new treatment has left his body feeling the effects more severely.

This Friday will be treatment #8 for Sid. As I said before, the last one was noticably more difficult than any other. So - as you can imagine - no one is really eager for this next one. 

It's redeeming quality, however, is that this one is somewhat of a milestone. We were told that this one would be the last chemo that included the Oxaliplatin. This is the drug that has caused the neuropathy and cold sensitivity. With it being January in northern Utah I'm sure it comes as no surprise that Sid will be glad to be rid of it.

That's really the only "sure thing" we know right now. He has a CT scan scheduled this week that his doctor will study and use to make decisions about what the next step is. We're hoping to find out what that is when we talk to his doctor on Friday. 

Treatment weekend is all consuming for us in almost every way. When I have a minute to post I will, but I will need to ask for your patience in waiting for me to compose myself once the dust has settled from the weekend's intensity.

In the meantime, please remember to keep Sid's medical team in your prayers; they have important decisions to make this week. 

I am very aware of the many prayers being said on our family's behalf. I know there are many because I see them at work: I notice the resiliency of my kids and their mature emotional grasps go way beyond their years; with all the sicknesses going around our family seems to get "skipped"; I had a long week of little sleep and somehow I was able to find more patience than I should have been able to; Sid has been able to take the time he needed to recover and that time taken didn't negatively impact his work load at the bank; too many things are working well for me to ignore the obvious divine intervention. 

With all these little details adding up I know that the big picture stuff will too, even if I can't see it clearly yet. 



Comments

Post a Comment

Popular posts from this blog

Miraculous

After a miraculous stay at the hospital, Sid was discharged on Thursday - exactly one week from his surgery. I use "miraculous" very intentionally. There isn't a logical reason for Sid to be healing so well. We were told his stay would most likely be 10-14 days.  I should make mention that the obvious blessings apparent in this journey do not (and have not) always help us avoid difficulties. The first night home was incredibly hard. The instant shift from having a professional nurse monitoring all of Sid's meds, food, wound care, etc to us taking on all of that responsibility, was... overwhelming. Every department sends you home with a literal packet of info to read and there are some discrepancies on how to handle certain care. I consider myself a very capable person and I also have a decent background in medical care between my days as an EMT and my college job at the plasma center. It was still a lot to have thrust on us all at once. But with some good planning and...
1 comment
Read more

Sunday Will Come

I had a good cry about a week ago. It's been a while since I let it all out when thinking about Sid's diagnosis. But as this day (and week) has crept closer all of the memories of this same week, last year, have come flooding back. A year ago today life shifted for us. Honestly, I feel like I've lived 6 years in the past 365 days (give or take some). There's a part of me that wants to try and explain what I was feeling and experiencing; it somehow seems significant to do so, even if just for documentation purposes. But trying to put it into words seems impossible; it's a bit too personal to lay it all out, and at some point it's only really comprehended if you're actually experiencing it. I obviously don't wish that on anyone. But even in reflecting on the gloomy and painful memories I am reminded of many kindnesses. There was, and is, a lot of support and an incredible amount of love. I do love remembering that part.  I also want to express gratitude fo...
Post a Comment
Read more

Post surgery: Day 4

Sid has been recovering so well! His doctor is so pleased with his progress. For the most part the pain has been very controlled with only a few rough goes.  At this point we are all just waiting for his intestines to finish waking up so that they can remove the NG tube that's removing his stomach acid and one of the chest tubes that's draining excess fluids from the surgery site internally. Each day he is getting more mobile and stronger. Hopefully tomorrow those tubes will be removed!
Post a Comment
Read more