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Showing posts from September, 2022

Quick procedures

Sid is weirdly really good at coming out of anesthesia. It's rather disappointing for me as his designated driver; I'd have liked the cheap entertainment. I suppose that should be considered  a positive trait, though.  Anyway, his endoscopy to biopsy his lymph node went well yesterday. We won't know anything from that until sometime next week. And his port placement today was simple; also good. He is a bit sore now and has a sweet looking bruise. Sid's team decided to start chemo next week on Friday. His doctor would like Sid to get an echocardiogram before chemo begins. I'm not entirely sure why, so it's in my list of questions for the next consultation.  In the next couple of days we have a couple of virtual doctor's visits/consultations, and then of course the echo and chemo. Thank you for caring and praying for us. ❤️

Next Week

Sid's endoscopy to biopsy his tracheal lymph node is scheduled for next Tuesday. Then the next day (Wednesday) he will get his port.  His oncologist, Dr. Nevela, told us the cancer board agrees with the plan to begin chemo. Sid could be starting that as soon as Wednesday (the same day his port is put in) pending the test results. He also asked Sid if he'd be willing to try a new approach to treatment that would include radiation after 4 months of chemo. Radiation is not typically used on stage 4 patients.  Sid asked him, "Would you do it if you were in my shoes?"  to which Dr. Nevela replied, "Absolutely." Today we are off on a last minute trip to enjoy some quality time together. It may be a long time before Sid feels well enough to do anything like this, so we wanted to seize the moment.

The Smallest Part Which I Feel

I've got to hand it to all of you. The creativity in the service that has been extended to us is mind blowing. I can not wait to be able to be in the giving end and to challenge myself to rise to your level. It's incredibly humbling to have so many people dig deep and come up with such thoughtful and personal offers. Our spiritual, physical, intellectual, and social needs have all been addressed.  This outpouring of love has got me wondering:  "How did we get blessed with so many incredible people in our lives?"  "I hope to be a friend that is deserving of this kind of love." "What can I do to be more in tune with Heaven so that I can follow your examples and readily bless others?" Moroni 7:5 For I remember the word of God which saith by their works ye shall know them; for if their works be good, then they are good also. Moroni 7:12-13 Wherefore, all things which are good cometh of God... ...that which is of God inviteth and enticeth to do good con

A diagnosis

Let's start this post off by noting that there is quite the learning curve to medical whatevers. Each bodily system has its own world all to itself. Even the Venn Diagram for Cancer has a lot of differences that are specific to the type. Heck, I didn't even realize there were different medicines used for chemo until today. And not only that, neither of us have had cancer before so we aren't even sure how to navigate appointments yet.  My point is that each case is going to be unique for a variety of reasons; positively or negatively. So the official diagnosis is Stage 4 Esophageal Adenocarcinoma. It began in the esophagus and has spread to the surrounding lymph nodes; thus the stage 4. Good news is that it's not showing up in any major organs. However, it is in lymph nodes near the original spot in the esophagus and one other lymph node higher up near the trachea. Because of this, surgically removing it isn't a likely option. They are also concerned because the larg

Calm

The last few days have been... calm. Calm in a way that Sid and I have questioned our sanity. We feel as if logically we should be a lot more unstable. Shouldn't there be a lot more emotional turmoil manifesting? How can we possibly feel so... capable? Now, some of that I attribute to our abstaining from consulting the internet. We both agreed that Dr. Google would only bring a lot of unneeded stress to the situation. The one exception was when I searched what "PET" stood for.  I anticipate that my medical terminology is about to get a huge upgrade here shortly. But the real reason we seem to feel at ease has a lot more to do with our Savior. We just keep feeling like things are going to be ok.  Maybe that means a full recovery. A year or two, or whatever of treatments and then we're done.  Or maybe that means I have to say "see ya later" to Sid. But that's just it, we honestly believe there is a later and that I would see him again.  So yeah, I really w

Finding Out

Hey, it's Taylee. In an attempt to keep everyone informed I've started this blog. I'll be posting informational updates here. I don't foresee Sid doing much writing at this point. So in general, assume that I'm the one writing.  A few weeks ago much of my family was in town for a family wedding. This included my brother Josh. He is a psychologist/pharmacist and works in Texas at a VA helping veterans with their mental health. Sid had been trying to find the right combo of meds for his anxiety for a while and asked Josh for advice. After learning what Sid was currently taking, Josh urged him to get in to the doctor and adjust them. Sid was able to get in to his doctor on August 16th. In almost a throwaway kind of way he mentioned that he'd had pains in his stomach and was having trouble swallowing. Since we had met our max out of pocket he had no problem doing some additional tests. His doctor set him up with Dr. Bryce at Franklin County Medical Center for an end