Quick procedures

Sid is weirdly really good at coming out of anesthesia. It's rather disappointing for me as his designated driver; I'd have liked the cheap entertainment. I suppose that should be considered a positive trait, though.

Anyway, his endoscopy to biopsy his lymph node went well yesterday. We won't know anything from that until sometime next week. And his port placement today was simple; also good. He is a bit sore now and has a sweet looking bruise.

Sid's team decided to start chemo next week on Friday. His doctor would like Sid to get an echocardiogram before chemo begins. I'm not entirely sure why, so it's in my list of questions for the next consultation.

In the next couple of days we have a couple of virtual doctor's visits/consultations, and then of course the echo and chemo.

Thank you for caring and praying for us. ❤️

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Again

Again. At a checkup/routine endoscopy they found a tumor again. Just before Christmas Sid went for his annual endoscopy. What was supposed to be a routine checkup ended up being the second time that we heard the doctors tell us that they found a mass growing in his esophagus. And with "again" comes remembering. Remembering the agony of hearing "cancer". Remembering the worry and the fear. The panic. Remembering treatments; the heaviness in your gut and on your heart in just getting through each of those days. Over and over again. And for quite a few days I was stuck there in the devastation. But slowly I have remembered other things. As more of our neighbors and friends have started hearing the news, I've been reminded of better things. There are people willing and waiting to help. So many people love our family. I can't even comprehend how so many people could care so much. We still have each other and there are plenty of moments to see sparks of hap...

Sunday Will Come

I had a good cry about a week ago. It's been a while since I let it all out when thinking about Sid's diagnosis. But as this day (and week) has crept closer all of the memories of this same week, last year, have come flooding back. A year ago today life shifted for us. Honestly, I feel like I've lived 6 years in the past 365 days (give or take some). There's a part of me that wants to try and explain what I was feeling and experiencing; it somehow seems significant to do so, even if just for documentation purposes. But trying to put it into words seems impossible; it's a bit too personal to lay it all out, and at some point it's only really comprehended if you're actually experiencing it. I obviously don't wish that on anyone. But even in reflecting on the gloomy and painful memories I am reminded of many kindnesses. There was, and is, a lot of support and an incredible amount of love. I do love remembering that part. I also want to express gratitude fo...

Complete Response

Last night Sid went to the Huntsman for his scheduled CT scan. This afternoon he spoke with his doctor to discuss the results. Dr. Nevala had mentioned at their last appointment that he was anticipating good things when his next CT appointment came around. HE WAS RIGHT!!! Everything has continued to shrink; so much so that the lymph node up by his trachea hardly lit up in the scan. He is literally having a "best case scenario" response, or as Dr. Nevala put it, a complete response. In the trial study that Sid's treatment has been based off of, 11% were considered to fall into that category. If it's not broke, don't fix it. So, Sid will stay on his current treatment plan for at least the next year; chemo pills, immuno and targeted therapy infusion every 3 weeks, and regular CT and echocardiogram scans. So many thoughts are racing through my head. Overall there's just so much gratitude. I should probably take time to more thoroughly record my thoughts somewher...

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